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5 Comments

  1. 1

    tran

    Having a most gifted and intelligant adult Son with an ASD .. I’d like to offer a few small comments on this article .

    The efforts of all in health care regarding early intevention is exceptional

    What happens a little later in life is that infant becomes a young child and in time an adult,the chance to access any sort of help through these years in the health system just isn’t there.

    My most vivid recollection of the utter contempt govts in general have for those with a disability came with a form from centrelink .. to determine if the child has a disability (our son was in receipt of around $20 a week ) at the time which helped with some pretty basic needs towards his disability, wearing out shoes , endlessly, etc… all the questions were aimed at an infant , IE child can watch block fall to floor..well yes hes 14 years old .. run that mentality through two pages ..sorry payment revoked.. this small bit of cash was never an issue for us ,the mean
    and delibrate intention to strip a little help to those in need though beggers belief.

    Chalk it up to sound ecenomic management of the previous govt or waste of the next .. that 900 bucks could be better spent Imo were there arn’t many votes, my bet is that won’t ever change whosoevers sorry arse gets themselves elected.

    tran

    Reply
  2. 2

    Fiona

    *likes*

    we need therapists in schools, attached to early intervention playgroups and preschools. We need therapists (speech pathologists, occupational therapists and psychologists) providing training and support to parents, teachers and aides who carry out the daily interventions with children with ASD, add in Physiotherapists for those kids with physical disabilities such as CP.

    While any money is welcome for therapies, fragmenting so that parents have $6000 to spend in a calendar year, rather than grouping the money to provide adequate public services for these children is just short sighted.

    Reply
  3. 3

    Fiona

    On cochlear implants and CP – wh are we relying on charities to provide these services such as the Shepherd and Spastic Centres?

    Reply
  4. 4

    Au secours

    An item on tv news about 2 weeks ago told the story of the insurance payment to thalidomide victims in Australia. I was shocked to see an older man in a wheel chair born with no arms saying he was going to use his money to have his eyes done ( I guess lasered) so that he could see properly because he couldn’t he wear glasses as he has no arms.
    WHAT IS WRONG WITH THIS COUNTRY that he has not been able to have this done before?? What an indictment of our society. This man should get all the assistance he requires.

    Reply
  5. 5
    Jennifer Doggett

    Jennifer Doggett

    I completely agree. Anyone who knows a family where one or more children have a disability knows how little support they get in comparison to what is needed. It’s not just about spending more money (although we need to do that as well) but also about listening to parents and to the children themselves to find out where best the resources can be allocated. So often money gets tied up in bureaucratic and administratively complex programs which don’t target the people who really need them. Giving consumers more autonomy over funding for their disability and the flexibility to direct resources where they will deliver the greatest benefit will help ensure that we get the best outcomes for this important and neglected group.

    Reply

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